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About Blog Events Team Partners Protocal Minutes Search Results More Field Notes Explain the purpose of the project right at the beginning (more important than the background) Does online / social media (in relation to a public engagement tour) present challenges for consent in the long run? i.e. once it’s out there, it’s out there. It’s important to listen more and ask people to expand when they speak or ask questions. Explain the development of working methods and situate the project in the context of research. Find ways for people to participate early on and throughout (eg, a show of hands) Always check sound levels Be clear about what we want from each audience we work with and why. Carers have a strong interest and stake in how loved ones are represented, it's important to listen to concerns. Ask for both positive and negative feedback – criticality is important. Why is it important for people to get involved (who don’t necessarily have personal ties to dementia)? Do artistic environments create better spaces for opening up? The levels of insight from the carer and the PLWD are different. History taking and taking time for conversation are the most important part of an assessment. Having continuity in appointments with clinicians can act as an important form of support. The MMSE is talked about a lot and I’ve never heard anything positive said about it. Aspects of this project may be inappropriate for people living with dementias. vs Aspects of this project may help communicate the experience of dementias to people who don’t live with them. It is upsetting to (perceive yourself) not to be able to do something. It is incredibly rewarding to overcome that feeling Helping each other out and listening is an important part of that process. People may participate, but not be able to understand consenting process – these people will be excluded from the presentational side of the project (information sealed / closed off). Reading out scripted information is not good – it’s important to be personable. Taking time to get to know each other is really important (parachuting in is ineffective and uncomfortable). What do we mean when we say we are aiming for ‘new forms of assessment’? Researcher notes the challenge of being personable vs getting results when testing (part of professional development?)

ACE Developing Your Creative Practice - Supporting Imagery & Information Please find below some imagery and information in support of my Developing Your Creative Practice application. The proposed work would seek to expand on my knowledge of filmmaking techniques and especially in the use of 16mm equipment. The primary theme and location for this work would be Lincolnshire and the fens - I am interested in the area of the fens which was historically reclaimed from the sea. I want to understand the history of water management in this environment and those who have lived and continue to live here. The below work details some initial exploration of these techniques and themes, including previous experience of filmmaking, working with landscape imagery in Scotland, and people living with rare dementias. Further information is given about projects which have explored water management systems, the land and materials of the fens, and relationships between human and non-human systems. I have also included some links to relevant information about important sites, archives, centres of knowledge and cultural context for the proposed development work. LINCS 2020 Experiments with clay-making, pottery and painting. Experience with Filmmaking the 'Neva' is a multichannel video installation about dementia, narration and the landscapes of a test. Are the voices of people with dementia diminished by cognitive testing materials? This film demonstrates individual capacities for expression through narration whilst exploring creative, historical and aesthetic qualities hidden in a scientific test of reading. Featuring 6 narrators who encounter a range of challenges with reading; from perceiving letters and words, to speaking them aloud or understanding their meaning, the film aims to highlight retained strengths for communication through bodily gesture, facial intonation and the playful drive to express oneself. The short passage that is narrated in the film is commonly used by neurologists when assessing reading abilities, and it was devised by Prof Elizabeth K Warrington as part of the Queens Square Screening Test for Cognitive Defects. The text includes details from Prof. Warrington’s own personal history and the film creatively explores these names, places and objects in association with the narrations. This project has been funded by the Created Out of Mind residency at Wellcome Collection, London and UCL. The film will be toured around the UK throughout 2019, funded by a Wellcome Public Engagement grant. Installation & touring documentation can be found here Preliminary work related to themes in the DYCP application Water Storage 2019-present Diagrammatic drawings & paintings based on water management systems LINCS 2020 Experiments with clay-making and pottery, using soil from agricultural field. WATER TESTING for N — E º W ˝( S ) Seasonal School Between 11th - 15th March 2019, a series of workshops and practical experiments led by ten selected participants took place at Jupiter Woods, expanding on the states of domestic chaos and order by producing visual and critical responses. Research, documentation, conversations and materials produced during the week were consolidated in an exhibition. More Information Here Reading 1 – Old Dykes I Have Known Reading 2 – Punt & Plough Written Text - Dirty Waters Conditions for Ongoingness was a project furthering investigation into the symbiotic nature of human and non-human systems. The exhibition included documentation reflecting on a two-day permaculture workshop led by artist and environmentalist Charles Pryor in October 2017 and new works by invited artists considered our entwined relationship with the environment and with each other. More information here Links 16mm Camera Familiarisation Course The Outer Trial Bank Pinchbeck Marsh Pumping Station Flag Fen Archeological Park Fenland Collection ST Neots Museum The Hallaton Hoard at Harborough Museum Information about staff restructuring at South Holland Centre, Spalding

Home About Commercial painting Painting Painting remains a useful place to get down some thoughts, with a mixture of themes and projects. There often seems to be a relationship between humanism and different forms of technology. Assorted Paintings, 2012-present Mixed works Memes, 2021 Paintings of snapshots from social media Dashboard, 2016 - present Painting & augmented reality experimentation Baby Abstracts, 2015-17 Painting project about recognition and fragmented perception Friendship Rules, 2015-16 Painting project of favourite friends and dead painters The Swynnerton Plan, 2015-present Painting project about redaction and growth Back to All Projects On to Sculpture, Installation & Intervention

About Blog Events Team Partners Protocal Minutes Search Results More Ethical questions for artistic engagement and research with people living with dementia How is consent gained (& ongoing consent)? Does consideration of capacity and consent exclude people from participation? Does the project encompass differences in emotional range (not one size to fit all)? What is the comparative value to the participant to the practitioner? What happens (to the project, people, work, data etc) after the activities end? Process vs product (for whose benefit)? How do audiences change as the project progresses? Is it problematic for ‘dementia’ to act as an inspiration for artistic work / research? To what extent does the project interact with the person vs the illness? What considerations are there in place in terms of carer involvement? Does the extent of engagement offered suit the form and aims of the project? Are the activities culturally and socially inclusive? If work is by nature exploratory, how is this (uncertainty) communicated? How can the value of uncertainty in the process be aligned with clear, structured pre-emptive protocols? What is the justification for appropriation (in art and research)? Is criticality of the methods used embedded in the project and are there ways to adapt and change? Can the benefits of criticality outweigh the benefits of positive engagement? What is meant by positive engagement? i.e. what sort of experiences are to be encouraged?

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Testing Situations About Blog Events Team Partners Protocal Minutes Search Results More 2020 7th February 2020 11am-3pm - Testing Situations at The National Innovation Centre of Ageing, Newcastle Join us at National Innovation Centre of Ageing and share your experiences of dementia, assessment and art. Over the last year, artist Charles Harrison and the Testing Situations team have been touring around the UK to learn more about people's experiences of being tested.For this final showcase event Testing Situations will be presenting an exhibition of learning from the tour alongside screenings of 3 artistic films made by, or in collaboration with people living with dementia. In the morning session we will hear from speakers about their experiences and watch three short films. This will be followed by a panel discussion and audience Q&A. In the afternoon session you will be invited to engage with artistic outputs from the project and take part in a drawing and mark-making workshop. The event is open to all and may be particularly relevant for people who have received a diagnosis of dementia, carers and for researchers, artists and film-makers working with themes of ageing, creativity and care. READ MORE The Testing Situations exhibition will also be on display 10-4pm, Saturday 8th February. This event has been funded by a Wellcome Public Engagement Grant, working in collaboration Rare Dementia Support, UCL and Newcastle University. Some aspects of these activities may be filmed, photographed or recorded with an audio device. Please click here for more information. 2019 PAST EVENTS MAY St George’s Hospital Young Onset Dementia Support Group Date: 29th May, 6:30pm-8:30pm Description: As part of this regular meeting of people affected by young onset dementia, we will be screening the ‘Neva’, a film made in collaboration with members of rare dementia support groups. The screening will be followed by conversation about people’s experiences of cognitive testing and an object handling session inspired by objects seen in the film (approx. 30mins). The aim of this work is to better understand the experience of testing and for this to contribute to improving clinical methods in the future. Location: John Parker Lecture Theatre at St George's Hospital, Blackshaw Rd, Tooting, London SW17 0QT Places for this event are limited, if you would like more information about the group or would be interested in coming along please contact Nicola.Zimmermann@stgeorges.nhs.uk (Suitable for 10-25 participants) Flyer / Map JUNE Carer Support Group, Epsom Date: 4th June, 6:30pm-8:30pm Description: As part of this regular meeting of carers of people living with dementia, we will be screening the ‘Neva’, a film made in collaboration with members of rare dementia support groups. The screening will be followed by conversation about people’s experiences of cognitive testing and an object handling session inspired by objects seen in the film (approx. 30mins). The aim of this work is to better understand the experience of testing and for this to contribute to improving clinical methods in the future. Location: Orchard Centre, Appleby House, Longmead Road, Ewell KT19 9RX Places for this event are limited, if you would like more information about the group of would be interested in coming along please contact claire.robertson54@gmail.com (Suitable for 10-25 participants) Hertfordshire PCA Support Group Date: 12th June, (1-3pm) Description: As part of this regular meeting for people affected by Posterior Cortical Atrophy (PCA), we will be screening the ‘Neva’, a film made in collaboration with members of rare dementia support groups. The screening will be followed by conversation about people’s experiences of cognitive testing and an object handling session inspired by objects seen in the film (approx. 1hour). The aim of this work is to better understand the experience of testing and for this to contribute to improving clinical methods in the future. Location: St Andrew's Church, 37 Quickley Lane, Chorleywood, Hertfordshire WD3 5AE Places for this event are limited, if you would like more information about the group of would be interested in coming along please contact: r.mckee-jackson@ucl.ac.uk (Suitable for 10-25 participants) Kent Young Ones Date: 19th June, 10am-12noon Description: As part of this regular meeting of people affected by young onset dementia, we will be screening the ‘Neva’, a film made in collaboration with members of rare dementia support groups. The screening will be followed by conversation about people’s experiences of cognitive testing and an object handling session inspired by objects seen in the film (approx. 30mins). The aim of this work is to better understand the experience of testing and for this to contribute to improving clinical methods in the future. This will be a private event so unfortunately there aren't any places available. SYL @ #BrainPower: UCL Neuroscience Festival Date: 22nd June, 11am-5pm Description: Brain Power will be a whole day of public events showcasing the best of neuroscience at UCL, including interactive stalls, talks, short films, artworks, live demonstrations, storytelling, and workshops. At this event we will be presenting research and artworks looking at artistic gestures in relation to balance and movement produced as part of trials at UCL Whole Body Sensorimotor Laboratory. Single Yellow Lines will also be trialling a new interactive activity for public engagement, inviting visitors to paint single yellow lines in virtual reality. Location: The Cloisters, University College London, Gower Street, London. WC1E 6BT This event is open to the public, please drop in. (Suitable for 100+ participants) JULY Alexandra Palace – Transmitter Hall Date: 16th July, Time 2pm-4:30pm Description: Alexandra Palace Charitable Trust is a Grade II listed entertainment and sports venue in London. Thanks to Heritage Lottery Funding, the palace has established a programme of activities that supports people who are living with dementia and their carers. We will be working alongside established dementia groups and networks at Alexandra Palace and in the first session we will be screening the ‘Neva’, a film made in collaboration with members of rare dementia support groups. The screening will be followed by conversation about people’s experiences of cognitive testing and object handling inspired by objects seen in the film (approx. 1hour). Following refreshments, we will invite participants to reflect on testing roles and new research through a series of drawing exercises (approx. 1hour). Drawings produced will form part of an exhibition at Alexandra palace taking place in November. Location: Transmitter Hall, Alexandra Palace, Alexandra Palace Way, London N22 7AY (Map ) (Suitable for 20-50 participants) Places are limited, for more information and to register for the event please contact charlesrobertharrison@gmail.com or phone 07824778390 . All are welcome to participate or observe but please be aware that some aspects of these sessions may not be suitable for everyone. AUGUST Unique Cottage Studios, Spalding Date: 9th & 10th August, 10am-4pm Description: This will be a two-day drop-in exhibition and event, where visitors to this beautiful rural arts facility will be able to watch and talk about the ‘Neva’, a film made in collaboration with members of rare dementia support groups. Visitors will also be invited to take part in our drawing activities, reflecting on testing roles and new research themes, whilst contributing to conversations about cognitive testing and art. Location: Unique Cottage Studios, Fulney Ln, Spalding, Lincolnshire PE12 6FA This event is open to the public, please drop in. (Suitable for 100+ participants) SEPTEMBER Glasgow CCA - Club Room & Cinema Date: 16th September, 10am-2pm Description: The Centre for Contemporary Arts is an arts centre in Glasgow, Scotland offering a year-round programme including exhibitions, film, music, literature, spoken word, festivals, Gaelic and performance. The first day of public engagement at Glasgow CCA will focus on historical developments in cognitive testing and the ways this area might cross over with contemporary art. Project lead Charlie Harrison will give an introduction to his work in this area, which has been developed as part of the Created Out of Mind residency at the Wellcome Collection. This introduction will be followed by a screening, object handling activity and conversation about the ‘Neva’, a film made in collaboration with members of rare dementia support groups which responds to a test of reading devised by Emeritus Professor Elizabeth K Warrington. The afternoon session will invite participants to reflect on testing roles and new research through a series of drawing and writing exercises and we will discuss how artistic content for Testing Situations should be interpreted, stored and presented to the public. (Lunch will be provided). Location: Glasgow CCA, 350 Sauchiehall St, Glasgow G2 3JD (Suitable for 20-60 participants) To book a place, please follow link in title above. Living well with dementia - Leeds Date: Wednesday 25 September 2019 Description: As part of an event co-produced by Every Third Minute Festival Curators and West Yorkshire Playhouse, Testing Situations will be presenting the ‘Neva’, a film made in collaboration with members of rare dementia support groups. Visitors will also be invited to take part in our drawing activities, reflecting on testing roles and new research themes, whilst contributing to conversations about cognitive testing and art. Location: The Met Hotel Leeds, King Street, Leeds LS1 2HQ This event is fully booked. Glasgow CCA - Club Room & Cinema Date: 30th September, 10am-2pm Description: The second day of public engagement at Glasgow CCA will focus on how gesture, artistic action and embodiment can be observed using motion capture systems, data analysis and virtual reality. The day will begin with an introduction to the Single Yellow Lines project and its development through collaborations with researchers at UCL Whole Body Sensorimotor Laboratory and participants in research trials investigating balance and movement for people with posterior cortical atrophy (a rare dementia affecting visual perception) and typical Alzheimer’s disease. We will consider the extent to which artistic actions can be interpreted and analysed, exploring the multiple forms of data produced in the research. The afternoon session will begin with screenings of a data-produced film, reflecting the bodies of participants in the trials with motion analysis and physiological responses converted into video and sound. Following this, we will trial a new interactive activity for public engagement, inviting participants in the workshop to paint single yellow lines in virtual reality. The day will finish with a short discussion. (Lunch will be provided). Location: Glasgow CCA, 350 Sauchiehall St, Glasgow G2 3JD (Suitable for 20-60 participants) To book a place, please follow link in title above OCTOBER Testing Situations at Bloomsbury Festival Date: Saturday 19th October 10am-4pm Location: Lumen URC , Community Room 1, 88 Tavistock Pl, Kings Cross, London WC1H 9RS Description: For Bloomsbury Festival, Testing Situations will be contributing a drop-in exhibition and series of events, including screenings of the ‘Neva’, a film made in collaboration with members of Rare Dementia Support groups and researchers at UCL Dementia Research Centre as part of the Created Out of Mind Residency at Wellcome Collection. Visitors will also be invited to take part in drawing activities, reflecting on testing roles and new research themes, whilst contributing to conversations and discussion about the experience of cognitive testing and art. Click here for more information This event is open to the public, please drop in. (Suitable for 100+ participants) Single Yellow Lines at Barbican Centre Date: 23rd-27th October Location: Barbican Centre, Silk St, Barbican, London EC2Y 8DS Description: Drop into the Hub for Life Rewired and take part in a live experiment that incorporates real world mark-making and virtual painting environments. Artist Charles Harrison invites you to paint your single yellow line in this Hub take-over that explores the characteristics of singular painted gestures. This event will also include a one-day audio-visual installation in the Level G studio on 26th October. Click here for more information This event is open to the public, please drop in. (Suitable for 100+ participants) NOVEMBER Taking Care. Fabrica, Brighton Presented in partnership with ESRC Festival of Social Science. Date: November 4th, 10am-4pm Location: Fabrica Gallery, 40 Duke St, Brighton BN1 1AG Description: Fabrica is a visual arts organisation based in a former Regency church in the heart of Brighton. In conjunction with Care(less) , an exhibition by artist Lindsay Seers, the Testing Situations team will consider how cognitive tests help us understand how the human mind works by leading visitors through a series of testing experiences and drawing activities. Click here for more information (Suitable for 100+ participants) Grainger Market, Newcastle Date: November 14th, 10am-4pm Description: Grainger Market is a bustling Market Hall dating from 1835. Testing Situations will be offering a range of drop-in events, including screenings and conversations about the ‘Neva’, a film about testing and narration, made in collaboration with members of Rare Dementia Support groups and researchers at UCL Dementia Research Centre. Visitors will also be invited to take part in a series of drawing activities, reflecting on testing roles and new research themes. Location: Grainger St, Newcastle upon Tyne NE1 5QQ This event is open to the public, please drop in. (Suitable for 100+ participants)

OD Home . Drawings . Paintings . Digital . Prototypes

Testing Situations About Blog Events Team Partners Protocal Minutes Search Results More Project Lead Artist Charlie Harrison has been collaborating with researchers and building projects that foreground the creative strengths of people with rare dementias for the past 5 years. He is particularly focussed on opening up broad public conversations about the experience of cognitive testing and how art might be a useful tool to shape best practice. Collaborators & Advisors Prof Seb Crutch ’s research has focused on the neuropsychological investigation of perceptual function and language in individuals with neurodegenerative disease and stroke. Particular interests include the exploration of visual disorders and disease progression in posterior cortical atrophy (PCA), and analysis of refractory access disorders, and abstract and concrete conceptual knowledge. Emeritus Prof Elizabeth Warrington is a true trailblazer in cognitive testing devising materials and methods of assessment that are used widely by researchers, clinicians and neuropsychologists. Now retired, Elizabeth continues to be an honorary member of the UCL Dementia Research Centre, sharing her knowledge with scientists and artists in the field. Prof Brian Day has studied many different aspects of motor control in people who are either healthy or suffer from a wide range of neurological diseases. His current research is devoted to understanding multi-sensory processes that control and integrate whole-body motor activities. Prof. Paul Camic is a clinical health psychologist who has a long term interest in the arts and healthcare. He also has a particular interest in public health approaches to dementia care. Emma Harding is a social scientist doing mostly qualitative research (home-based interviews and observations) with people with different kinds of dementia. She is interested in how people describe, rate and otherwise capture or express their experiences of having a diagnosis of a dementia and in finding new and innovative ways to do this. Keir Yong is a research psychologist whose work has primarily focused on investigating how Alzheimer’s disease and posterior cortical atrophy affect visual perception and spatial awareness. His research combines approaches of neuropsychological and engineering disciplines to develop and evaluate strategies supporting independent activities. Bhupendra and Urvashi Desai were part of the ‘Neva’ film project, and continue to make valuable contributions to this work. They are particularly interested in shifting the focus to include human attributes such as love, compassion, laughter and wisdom. Rose de Paeztron and Keith Roberts were active participants in many projects at Created Out of Mind, including the 'Neva' film. They have also been keen members of YOYO, a support group for people with young onset dementia in North London with a focus on activities such as creative learning, dance, singing and music therapy. Mhari McLintock was a narrator for the Neva film and has also recently participated in a number of research trials. Mhari has a mantra of “if not now, when?” and likes to get around on a tandem. Roberta McKee Jackson has been actively involved in several Rare Dementia Support groups, and now provides regional support for the charity. Through her work Roberta hopes to raise awareness of rare dementias and the importance of support groups for those living with dementia and their families/carers Charlie Murphy is an artist investigating visual, linguistic and scientific metaphors and tools used to describe, analyse and understand the impact of dementias. Charlie is creating a range of artworks, performances and events which aim to raise awareness about the varied and unexpected impacts of dementias at social, personal and cellular levels. See examples of work in progress here Emilie Brotherhood is a PhD student and Research Fellow at the Dementia Research Centre, UCL, with a background in cognitive neuroscience. Emilie was a collaborator in the Created Out of Mind residency, and continues to work with Charlie Harrison on the Rare Dementia Support Impact study and ethical considerations for artists working in the field. Dr Chris Hardy is a Postdoctoral Research Fellow at the Dementia Research Centre (UCL) funded by Action on Hearing Loss and the Dunhill Medical Trust. His current work focuses on understanding the relationship between hearing loss and dementia, and he has a special interest in a rare group of ‘language-led’ dementias known as the primary progressive aphasias Dilek Ocal , Phd student and study coordinator, has been involved in Alzheimer’s research for the past 5 years. Her work combines behavioural and cognitive assessments with novel and more conventional neuroimaging methods to uncover the relationship between dementia related brain changes and the diverse behavioural and cognitive presentations within the Dementia syndrome. Kirsty Lu has been researching Alzheimer’s disease for 7 years, focussing on measuring the earliest changes in memory and thinking. As someone who administers cognitive tests week by week, she is interested in the strengths and limitations of this type of assessment, and in reflecting on the different ways that people respond to the experience of being tested. Hannah Carr is a psychology research assistant working on projects focusing on ageing, memory and cognition. She administers many different tasks to tap into these three elements and is interested in how different people perform on these tasks and how they respond to them. Testing Situations owes a huge debt of thanks to a number of other people whose valuable contributions of time, conversations, participations and friendships have shaped this work immeasurably. Rare Dementia Support Nikki Zimmerman Eva Tait John Fowler Rosemary Fowler Sheila Keegan Chris Pouncey Clive Smith Christine Smith Helen Smith Created Out of Mind Kailey Nolan Gill Windle Julian West Hannah Zeilig Millie van der byl Williams Harry MacQueen Natasha Trotman Caroline Evans Janette Junghaus Fergus Walsh Susanna Howard Janneke van Leeuwen Nicholas Firth UCL Suzie Barker Ivanna Pavisic Jason Warren George Thomas Elia Benhamou Amy Peters Matthew Bancroft Diego Kaski Wellcome Harriet Martin Tony Woods Bridie Rollins Natasha Wright Touring Contacts Helen Craig Claire Robertson Diane Garfield Robina Maslen Julie Negus Kester Muller Sabrina Moxom Marine Begault Carolyn Goodwin Clare Hankinson John-Paul Muir Catherine Butcher Karen Inglis John Lewis James Upton Sarah Nolan Viviana Checchia Other Amelia Carton Daniel Fridholm Katie Simpson Hannah Fridholm Richard Day

Gallery Walk Home Residents Partners Resources Our team and partners The residency programme will connect with many individuals, communities and organisations. We have been building the project in consultation with community leaders, regional arts and heritage organisations and professionals with experience of delivering similar projects. Project Management Gallery Walk residencies are managed by Charlie Harrison and Katie Simpson, who have over 15 years experience leading innovative arts projects, working with some of the most exciting creative ideas and practitioners in the UK and internationally. Katie is currently curator of exhibitions at Nottingham Contemporary and Charlie is an artist working in creative health, education and research at University College London. Both grew up in Lincolnshire, with a passion for the area and all it has to offer creatively. After moving to Pinchbeck in 2021, they have been working to connect a regional network and provide more opportunities for creatives to make and share their work. Regional Partner Organisations - confirmed Each resident will have opportunities for mentorship, networking and display. Residencies will be self-led, but have options for dialogue and support with our growing network of regional partner organisations. Contemporary Visual Arts Network (CVAN) East Midlands Link Hub Sleaford Link North Sea Observatory Link Boston Guildhall Link Boston Gliderdrome Link Lincoln Museum Link Spalding Gentleman's Society Link RSPB Frampton Marsh Link Let’s Work Together Get in touch so we can start working together.

WP43 (Collaboration with Matt Redman ) 2014 Work Programme 43. Matt Redman & Charles Robert Harrison at Community Arts Centre, Brighton. Previous Project Next Project

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